***PLEASE NOTE THAT THIS PROJECT HAS BEEN COMPLETED. THIS WEBSITE PROVIDES INFORMATION ABOUT THE PROJECT, AS WELL AS THE PROJECT REPORTS, PRESENTATIONS AND PUBLICATIONS***
HealthGovMatters was a three-year (2009-2012) collaborative research project which was co-funded by the European Commission as part of the Seventh Framework Programme ‚Science in Society’ initiative. The project comprised three core areas of research and two specific forms of events and is being undertaken by a consortium of three institutions based in Austria, Germany and the United Kingdom.
HealthGovMatters explored patients' and professionals' formal and informal involvement in governing the production and mediation of health and medical knowledge. We used rich social science and ethnographic methods, including textual analysis, interviews and participant observation to address forms of engagement with predictive, diagnostic and therapeutic technologies. Our interest was in exploring interactions between constellations of actors (patients, care-givers, health professionals, citizens, patient and professional organisations) who become involved in mediating and articulating definitions and lived meanings of health, illness and disease in the context of encounters with new health technologies.
We focused on new imaging (predictive and diagnostic) technologies, computer implants and new pharmaceuticals/devices which are being developed and implemented in the fields of genetics and neurology - two key sites in which new technologies enabled by the synergism of developments in such core fields as nanotechnology, biotechnology, information technology and cognitive sciences are being integrated. Often referred to as "converging technologies", their integration in the area of medicine is viewed as holding the potential to vastly improve ICT capacity for medical data management and information generation and to provide the foundation for the translation of research knowledge into clinical trials and clinical practice. In the light of new developments, we asked: How do patients and professionals at the experiential and institutional levels represent new diagnostic, predictive or therapeutic possibilities and make decisions regarding their development and use? Additionally, in what ways might the axes of gender and generation (and more specifically women and children) make a difference in how novel health technologies are conceptualised, developed, implemented or refused?
This project has been completed. You can link to the partner institutions by clicking on the respective icons below. For post-project correspondence, please contact Jacquelyne Luce or Alice Vadrot.
for Cultural Studies
Am Seemooser Horn 20
88045 Friedrichshafen, Germany
Dr Jacquelyne Luce
+49 (0)7541 6009 1344 +49 (0)7541 6009 1344
1070 Vienna, Austria
a.vadrot(at)iccr-foundation.org +43 (0)1524 1393-125 +43 (0)1524 1393-200